Here I am sitting in my bed. I've nearly finished my Tax Return, but as usual I'm cutting it fine - I always forget that I need annual interest statements from my banks and they always come back with "5 working days" which drives me nuts!
In fact, in today's computerised world, I resent the banks as being the only organisations that still quote in "working days" - its not as if computers go to bed now is it! It makes me bad!
Anyway, no time for grumbling ....
I wanted to mention the charity gig that the band is doing as a testimonial for me. All proceeds to Cancer Research UK - I'll include the donation site in the next post. I'm aiming to be there and also hoping to get up and do a song or two, but I also have a stand-in to cover the rest.
The gig is on the 26th Feb at the Railway Club in Stretford, Manchester. More details to follow. Hope to see you there!
That's it for now,
Col
Friday, 22 January 2010
Monday, 18 January 2010
Monday 18th January 2010
Late as usual, but this past week has been quite busy with medical appointments. We're off the disease-related stuff now, and onto palliative care physical stuff.
I had my new hospital bed delivered last Tuesday against the odds. We were still snowed in, and the delivery guys didn't fancy driving down the hill, so, amazingly, they constructed a contraption of all the bed parts and wheeled id down the hill on its castors through the snow, which I thought was beyond the call of duty - very impressed!
Bed has mad a great difference. the mattress seems similar to my existing one, but definitely cushions the potential bedsore areas better than mine did. It's also great for lying on my back - raising the head and legs is so much more comfortable, and also sitting up to eat or watch telly is good too.
Wednesday I saw the Orthopedic Therapist, and she came with a catalogue of a huge set of devices, all designed to help. I've already got an inflatable bath cushion to help me in and out and whilst I'm in the bath, plus a padded toilet seat on its way (I have absolutely no padding on my bum these days, and sitting on the loo or in the bath really hurts me' bones!)
I've even been offered a stair lift. It seems that when your prognosis is as limited as mine, you pretty much get anything you want for free, because they are only lending it to you for a short time. I'll leave it a little while, but I'm definitely noticing it getting even harder to get up stairs, so I can see a stair lift being introduced shortly!
Got to go now, its getting painful to write and I need to lie down again. Soon I will move my laptop up to my bed which will help me do more regular posts and also may help me do my Tax Return, which sill needs to be done as long as the IR believe there is a breath left in my body no doubt :(
Cheers,
Col
I had my new hospital bed delivered last Tuesday against the odds. We were still snowed in, and the delivery guys didn't fancy driving down the hill, so, amazingly, they constructed a contraption of all the bed parts and wheeled id down the hill on its castors through the snow, which I thought was beyond the call of duty - very impressed!
Bed has mad a great difference. the mattress seems similar to my existing one, but definitely cushions the potential bedsore areas better than mine did. It's also great for lying on my back - raising the head and legs is so much more comfortable, and also sitting up to eat or watch telly is good too.
Wednesday I saw the Orthopedic Therapist, and she came with a catalogue of a huge set of devices, all designed to help. I've already got an inflatable bath cushion to help me in and out and whilst I'm in the bath, plus a padded toilet seat on its way (I have absolutely no padding on my bum these days, and sitting on the loo or in the bath really hurts me' bones!)
I've even been offered a stair lift. It seems that when your prognosis is as limited as mine, you pretty much get anything you want for free, because they are only lending it to you for a short time. I'll leave it a little while, but I'm definitely noticing it getting even harder to get up stairs, so I can see a stair lift being introduced shortly!
Got to go now, its getting painful to write and I need to lie down again. Soon I will move my laptop up to my bed which will help me do more regular posts and also may help me do my Tax Return, which sill needs to be done as long as the IR believe there is a breath left in my body no doubt :(
Cheers,
Col
Friday, 8 January 2010
Friday 8th January 2010
Hi folks,
Snowed in here for the last four days. No huge amounts of snow - 6 inches or so - but it doesn't take much for the hill into our cul-de-sac to become unusable, and now they've stopped gritting anything except main roads, I guess we'll be snowed in for some time yet, especially as its just started snowing again!
In fact the snow meant that I missed my consultant's appointment on Tuesday for my scan results. However, we did manage to catch up by phone, and the overall results are as expected - new growth in lung and liver mets since my last chemo. No news about whether there is any known or likely spread elsewhere, but it seems that the liver and lungs are the two area to focus on. My liver is still working ok at the moment and I'm not in any pain, so I'm still little the wiser as to how long I can fight this for.
I'm getting the new hospital bed delivered on Monday which should help with comfort levels getting out of bed and sitting up to watch TV and also reducing the risk of pressure sores with the special matress.
No other news, just plodding on regardless, and sleeping ridiculous hours per day!
Cheers,
Colin x
Snowed in here for the last four days. No huge amounts of snow - 6 inches or so - but it doesn't take much for the hill into our cul-de-sac to become unusable, and now they've stopped gritting anything except main roads, I guess we'll be snowed in for some time yet, especially as its just started snowing again!
In fact the snow meant that I missed my consultant's appointment on Tuesday for my scan results. However, we did manage to catch up by phone, and the overall results are as expected - new growth in lung and liver mets since my last chemo. No news about whether there is any known or likely spread elsewhere, but it seems that the liver and lungs are the two area to focus on. My liver is still working ok at the moment and I'm not in any pain, so I'm still little the wiser as to how long I can fight this for.
I'm getting the new hospital bed delivered on Monday which should help with comfort levels getting out of bed and sitting up to watch TV and also reducing the risk of pressure sores with the special matress.
No other news, just plodding on regardless, and sleeping ridiculous hours per day!
Cheers,
Colin x
Friday, 1 January 2010
New Year's Day 2010
Happy New Year everybody!
Wow - 2010!
Had a quiet one last night - actually spent it watching a great film called "Australia" with Nicole Kidman. Tried a little champagne but only managed half a glass this time, and now I'm back on reduced steroids it rather wiped me out.
I was up at 7.30am yesterday which is extremely early for me, to have my last CT scan at Halifax hospital. Pretty routine as usual, but with the early start and not getting to bed until 1am it was a long day.
In return, I've spent most of the day in bed today to recover, but now I've stayed up beyond midnight again so I'm in danger of getting out of cycle again. Shouldn't be a problem - I've got nothing on until Monday so I've got time to bring things around again.
Nothing much else to offer at this point, so I hope you enjoy the weekend!
C x
Wow - 2010!
Had a quiet one last night - actually spent it watching a great film called "Australia" with Nicole Kidman. Tried a little champagne but only managed half a glass this time, and now I'm back on reduced steroids it rather wiped me out.
I was up at 7.30am yesterday which is extremely early for me, to have my last CT scan at Halifax hospital. Pretty routine as usual, but with the early start and not getting to bed until 1am it was a long day.
In return, I've spent most of the day in bed today to recover, but now I've stayed up beyond midnight again so I'm in danger of getting out of cycle again. Shouldn't be a problem - I've got nothing on until Monday so I've got time to bring things around again.
Nothing much else to offer at this point, so I hope you enjoy the weekend!
C x
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